As the HIV response focuses on closing the remaining gaps in prevention, testing and treatment services, an evolution of the underlying routine data systems is needed to identify epidemiological patterns and service gaps, and accelerating targeted interventions.
These guidelines focus on the collection and use of person-centred data across the HIV cascade – from prevention, testing and treatment to longer-term health care – building on the guidelines of information from 2017 and 2020. The updated guidelines present a minimum standard data set, priority indicators and recommendations to strengthen the use of data in HIV prevention, testing and treatment, and links with services for sexually transmitted infections, viral hepatitis, tuberculosis and cervical cancer. The guidelines also cover the use of routinely collected data for HIV surveillance (including measurement of HIV prevalence and incidence) and emphasize the use of data from different sources to get a better picture of epidemiological trends.
Digital data plays an important role in the transformation of health information systems and the guidelines discuss the governance of digital health data during the transition from paper-based to digital systems and the importance of interoperability , unique identifiers, data security, privacy and confidentiality, and data access. Expanding national health information systems to include individual-level data will improve the quality and sustainability of data collection and use to improve health decision-making and health outcomes. health.